Zika Virus Causes Birth Defects: Confirmed

Scientists at the Centres for Disease Control and Prevention (CDC) have concluded, after careful review of existing evidence, that Zika virus is a cause of microcephaly and other severe fetal brain defects. In the report published in the New England Journal of Medicine, the CDC authors describe a rigorous weighing of evidence using established scientific [...]

By |2016-04-14T14:20:36+00:00April 14th, 2016|Uncategorized|0 Comments

New Drug to Treat Morquio Syndrome to be Made Available in Wales

A new drug to treat Morquio Syndrome, a rare life-limiting inherited disease, will be available on the Welsh NHS, Health and Social Services Minister Mark Drakeford has announced. The Minister has approved a recommendation from the All Wales Medicines Strategy Group (AWMSG) that Vimizim® (elosulfase alfa) should be available in Wales. Morquio Syndrome is a [...]

By |2016-03-17T14:21:05+00:00March 17th, 2016|Uncategorized|0 Comments

Same but Different Launches Project to Put Spotlight on Rare Disease

Same But Different, a not for profit organisation, will launch The Rare Project on 26th February at Chester Zoo, using photography to showcase the personalities of young people and children with rare diseases. Photographer and founder of Same but Different, Ceridwen Hughes, has worked with families over the last twelve months to build a gallery [...]

By |2016-02-25T12:16:17+00:00February 25th, 2016|Uncategorized|0 Comments

Positive News For Hepatitis C Patients

Merck has announced that its new investigational hepatitis C drug, elbasvir/grazoprevir, has shown favourable results in phase III trials. It’s estimated that between 130-150 million people globally have chronic hepatitis C infection, and a significant number of those, who are chronically infected will develop liver cirrhosis or liver cancer. Around 500,000 people will die each year from hepatitis C-related liver diseases. [...]

By |2015-12-11T11:39:54+00:00December 11th, 2015|Uncategorized|0 Comments